About this Resource Directory
You’re not in it alone!
This resource directory is not a comprehensive listing of services, but rather a listing of mostly parent recommendations and will always be a work in progress. Updates to the directory are ongoing. Please feel free to share your experiences with providers with us!
Are you a father of a child or teenager (ages 5-18) with autism?
Have you ever felt that people don’t understand what your life is like and how you feel?
Have you ever been rejected, judged, or embarrassed by friends, family, or even complete strangers because you are the father of an amazing and wonderful child with autism?
Participate in a study about your experiences as a father of a child with ASD!
Your experiences as a father of a child with autism are unique and important. As a parent, you are the only person who really knows what it’s like to raise a child with autism. You have experienced the ups and downs, the laughter and tears, the joy and pain. We are inviting you to participate in a research study and share your experiences of stigma, stress, and social support. Your perspective will increase our understanding of what your life is like. You can help us know how it feels to be a father of a child with autism.
What do you do in the study?
Parents will be asked answer questions via an online survey about your experiences as a father of a child with ASD. The entire survey should take approximately 20 minutes to complete.
As a small token of appreciation for your participation, you may choose to be entered into a raffle for one of four Amazon Fire 7 tablets.
CONFIDENTIAL INFORMATION WILL NOT BE SHARED. No one will be identified by name in any reports. No one’s name will be shared with any other agency.
This study (IRB #18-09-054) has been reviewed and approved by the Institutional Review Board of La Salle University on October 8, 2018
Questions? Please do not hesitate to contact the lead experimenter, Twanesha Wilcox, M.A. by email at firstname.lastname@example.org
A message from Alyson Gutman, MD:
Cohen Children’s Medical Center of New York is conducting a major national study focused on parents’ perspectives and experiences related to sharing information about the diagnosis with their child with ASD.
If you are a parent of a child from 8 to 25 years of age who has been diagnosed with ASD (including Asperger’s Disorder or PDD), we would like your input. We want to hear from those of you who have spoken to their child about their diagnosis as well as those who have not yet had this discussion.
Please click on the link below to help other families by participating in this important research study:
This link is to an anonymous on-line questionnaire inquiring about your experience. The questionnaire will take about 15 minutes to complete.
If enough families complete our questionnaire, we hope to:
• Have the most representative study done to date based on a large national sample of respondents
• Give voice collectively to the experiences of hundreds of families
• Provide information to professionals so they can better support families in this process going forward
A few important re-assurances:
• Anonymity: All responses are anonymous
• IRB Status: Our study has been reviewed by the Institutional Review Board at Northwell Health and approved as an EXEMPT study. (Letter of exemption available upon request.)
• Conflicts of Interest: None
• Outside Sponsors or Funding: None
We know this is a busy time of year for people and we appreciate your time and consideration. A copy of our results will be offered to all families who complete the questionnaire.
Thank you in advance for your kind cooperation.
Alyson Gutman MD
Feeding Your Child Study - University of Delaware
You are invited to participate in a research study to evaluate parent feeding practices, child nutrient intake, and physical activity among children with and without Autism Spectrum Disorder.
This study will evaluate children between age 3-7 with AND without Autism Spectrum Disorder (ASD). The study involves one visit to the Energy Balance and Nutrition Lab at the University of Delaware, that will take 30 minutes to complete and can occur at an agreed upon location such as your home or at the University of Delaware, and several questionnaires that are completed at home. You will be compensated up to $75 for your time. Weekend and weeknight appointments are available.
Contact Jaimie Lafferty, RD, Graduate Student at email@example.com or (302) 831-2241
You are invited to participate in a study that examines brain activity when performing everyday skills in infants, children, adolescents, and adults with and without Autism Spectrum Disorder.
Who can participate?
• Typically developing infants (3-18 mos.), children (3-14 yrs.), & healthy adolescents/adults (15-50 yrs.)
• Infant siblings of children with ASD between 3 and 18 months
• Preterm infants (< 37 weeks of gestation) between 3 and 18 months
• Children with ASD between 3 and 14 years of age
• Adolescents and adults with ASD between 15 and 50 years
To volunteer for our study, please email the study PI, Dr. Bhat at firstname.lastname@example.org (preferred)
or call the Move to Learn – Autism Lab (M2L) at the University of Delaware: 1-302-831-7608.
Please email the study Principal Investigator, Dr. Bhat at: email@example.com (preferred) or call the Move to Learn - Autism Lab at 1-302-831-7608. Or visit https://sites.udel.edu/pt/research/anjana-bhat-ms-pt-phd/
Doctoral students at the University of Oklahoma are seeking parent participants for a study. The purpose of this study is to understand the perceptions of parents on IEP dynamics and meeting experiences.
If you are a parent of a child with a disability AND an individualized education program (IEP), and are interested in participating in this online survey about meeting experiences and parent-teacher dynamics (10-15 minutes), please click the link below.
Link to Survey: https://ousurvey.qualtrics.com/jfe/form/SV_0VXzLiPQIbcTlAh
See attachment for further details and for any questions for concerns please contact Belkis Choiseul-Praslin at firstname.lastname@example.org