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All those with older children and adult children should attend committee meetings to keep in touch with all the latest
changes in services and those things we need to work on to get changed.
 
This committee has turned the concerns of its members into action. We plan to continue to work with all those involved in
providing services to folks with developmental disabilities including the Legislature. Any concerns or questions, feel free to contact me.

- Karen Bashkow, Chair bashkowkaol.com

 

 

There is now a finished product to read from all the work done on the Best Practices Study. Our committee will be working on
utilizing this study to make services for our family members the best they can be.

ASD Releases "Best Practices for Serving Adults with Autism" Study. Click here to read!

 

1/12/06  Adult Issues Meeting Minutes
 
1. ASD Business Plan- A contract was signed with Michael Chapman to work on a business plan that will be presented to the ASD Board. This will hopefully enable the Board to understand what an organization under the ASD umbrella sees as a certified provider of adult services. Theda, Michael and I visited Developmental Disabilities Services Agency in NJ. They are currently instituting a program to provide services to folks with disabilities living at home with their families. This visit provided us with some insight and gave Michael some leads to investigate how others are doing what we hope to do one day.
The plan is due in June. It's possible that the provider agency could be up and running in Jan 07.
 
2. Family Support Waiver. Meetings are in the process to provide the public with info on the Family Support Waiver. This will help all those Medicaid eligible folks receiving DDDS and their families.
The Division of Developmental Disabilities Services (DDDS) has applied for a Family Support Waiver. Indiviuals must be Medicaid eligible to qualify. This would greatly assist those families whose loved ones with a disability qualify for services from DDDS. The proposed waiver would offer an array of supports and services to persons living at home with their natural families. These services are designed to promote choices and empowerment.
 
De. must come up with 4 million dollars in state funds. We need to contact our local Rep and Senator and encourage them to budget this money so families have more support in their homes.
 
3. Valentines for Legislators will soon be distributed. the message this yr is to encourage our Legislators to support funding of the Family Support Waiver. Be sure you get your Valentines. If you don't receive them by Feb 1, let me know.
 
4. Penny Orndorff, Director of Community Services of DDDS, provided with some information on Community Services. In the past, most DAP grads went into Special Population Program. That is no longer the case. Community Services is anxious to provide our family members that graduate from DAP with the best services available. Thanks, Penny
 
Notes: Jan 30, Mon,  7-9PM  Del Tech Stanton   Parent Information Center sponsoring: WANT TO KNOW HOW TO USE THE LEGISLATIVE PROCESS TO CHANGE OR MAINTAIN PROGRAMS AND SERVICES FOR CHILDREN WITH DISABILITIES? Some of our local Reps and Senators will be there. Good opportunity to meet them and let them know our views.
 
Please contact your local Rep and Senator and tell them to support the funding of the Family Support Waiver.
 
Next mtg will be in March. I'll give you the date ASAP.

 

Minutes Meeting on 9/21/05
 
Thanks to all who attended: Theda Ellis, Craig Shumaker,Dave Graham, Alexis Hackett, Dottie Lund, Marie-Anne Agazadian, Jane Graci, Liz O'Neill, Harold Rowland, Gloria Rybicki
 
1. Brief report given on committees being attended by Karen: Adult Special Populations Task Force . The committee has looked at entrance/exit criteria. Hopes to allow services to be provided to those most in need by reccommending these criteria.
- DDDS Strategic Planning Committee has met w/in the last month to enable the division to know the needs of those they service and put a plan in place to serve folks better.
 
Susan Peterson, Theda and Karen met w/ MA Smith of DDDS along with Roy LaFontaine (Deputy Dir) and others from the Division on the Best Practices Study. The info from the final report was highlighted and recommendations were discussed such as an Office of Autism, ASD as a service provider, doing a small pilot utilizing 2 folks w/ diverse needs and how their services are structured. All of these recommendations were recognized as valuable. The next step is for the ASD board to decide on how the organization will proceed and present that to the Division of DD.
 
2. Open mtgs: to include state and service providers? Grp felt that if agenda items required presence of guests, they would then be asked to join the committee.
 
3. Discussion concerning ASD's future role in adult services. Theda presented 4 items of discussion: Edelsohn Approach, Traditional services - ie, day and residential services, suuport broker and office of autism. The Edelsohn Approach concerns ownership of grp homes as the ARC now does. This did not get support from the grp. ASD as a traditional service provider also seemed like a huge endeavor. As a starting point the grp seemed most interested in support brokerage. A suggestion was made to start with a grp of 4 folks as a pilot. This number would help with capacity. The question arose , "What if there were no services available that were needed?"
 
Theda spoke of Dave Raymond from downstate that develops and supports jobs for a small grp of people. Group was interested in hearing abt his endeavor.
 
Office of Autism: most of the grp felt that this was the state's responsibilty. Karen spoke of committee experience at last Sp Pops Task Force mtg. Karen questioned if Community Services was being scrutinized as Sp Pops is? This would enable state to assess for themselves if CS is able to service the increased number of people w/ autism since many adults w/ autism have been served by Sp Pops in the past. Perhaps this will lead to the state deciding they need a separate "autism office". 
 
Karen asked members to state what needs they would like met by an ASD provider?
-at home supports, respite, recreation, transportation
-work support
-family supports w/ more flexibility
Concensus seemed to be since most grads would not get residential services that ASD could best help by lending supports to families to lessen the high demands of keeping their adult/child at home.

kbashkowcs.com
Karen Bashkow
Adult Issues Committee Chair